So Hannah has officially survived 3 days and as far as I know she hasn't had any gluten. Although, somewhere I'm sure it's lurking the the shadows and she's consuming it in her sleep. I guess that's my greatest fear - that no matter how hard I try to make sure everything is GF for her, I'll miss something and this will all be for naught. I know I can't think that way and that I have to trust that God knows the best for her and that he will bless my efforts. Kind of like this silly blog stuff -- I'm not a writer, but hoping that maybe it will do some good, if not for anybody else, at least for me!!
What a ridiculous day we had - eating GF was the least of our worries :-) Hannah's Dr. called and requested some more labs and a bone scan. Turns out, Rachel's Dr. put in orders for her to have bloodwork done as well. So off to the children's hospital to have it all done. Got there, signed in, went for the bone scan, told we couldn't do it there, that we would need to go to Asheville Imaging. Not a big deal, only a couple miles up the road. Went and had Rachel's blood drawn, where Hannah realized she was going to have to get stuck again too. MAJOR MELTDOWN for 5 minutes or so. Finally drug her into the room, had the blood drawn and off to have bone scan. No biggie. Keep in mind, I had picked the girls up at lunchtime, assuming we could have this all done and they wouldn't miss much school. Get to Asheville Imaging, they tell me, first of all, I'm in the right building, wrong floor, so up we go to the 2nd floor where when handed the orders, the receptionist looks at me like I'm crazy and she can't figure out why I'm there. No appointment. I went through the whole thing, it was supposed to be a quick scan, we were told we could come in anytime, etc... Super long story made short - we waited for almost 2 hrs and then it took like 5 minutes to actually do the scan. So much for getting back to school before music practice.
Decided I was going to tackle going out to eat -- the plan was to get all the lab stuff done, go home, eat and then send the girls back in time for music practice, their big program being in the evening. Didn't go as planned, so off to Moe's we went. Rachel ordered, then I asked the dude to change gloves, told him I wanted corn tortillas and to leave them on the foil when he put them on the grill. He was wonderful, he actually followed Hannah's order the entire way, letting no one else touch it and he didn't touch anything that would contaminate his gloves. We enjoyed our meal, but more importantly Hannah realized she could and CAN do this. There's nothing to be ashamed of or embarrassed about, just state what you need and expect in a friendly manner and keep going.
Day by day -- step by step -- we ARE moving - mostly forward!!! Now if only I could say the same about my kitchen. Think I'm going to tackle it this weekend -- wanna come help??
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