Counting Down to Scope Day

Counting down - less than 2 weeks to go.  After waiting all of last week to hear from the Dr's office re: Hannah's endoscopy, I finally got the call early Monday am (figures I was in the shower and missed it) so called them back and around noon we connected and scheduled her procedure for Monday, May 5.  Turns out Rachel won't be home that day, so Hannah will have a chance to have parents to herself, which will probably be a good thing, as she's pretty nervous and being a major diva about it :-)  I can understand, think I'd be nervous as well, but we'll get through it.

Seems like this has been my life lately.  I've done tons and tons of research, just hope it will stick in my brain.  We're trying to make a game out of it - for instance, yesterday we were at Wal-Mart and saw two kinds of GF pasta - one was rice and the other corn.  So the idea is to see which one tastes better.  For now, Hannah is ok with the whole thing, we'll see how it goes when it actually gets down to brass tacks.

I did get a taste of what it's going to be like though.  Hannah went on a 3 day field trip a couple weeks ago and I packed her a cooler.  She had tupperware containers of rice and cans of beans. once she got there, the cooler went into the fridge and she had access to it when needed.  Seems like people are pretty understanding.  I hope it will continue to be as positive, but don't have any delusions that this is going to be easy.

On another note -- I've been trying to be a little more pro-active with my own health, so 10 days or so ago, I started taking a thyroid supplement.  Imagine my surprise when I stepped on the scale for the first time in a while and I'd lost 3lbs.  I weigh less now than I did after walking 5x a week for 2 months.  So maybe I'm onto something.  Wouldn't that be great!!

Well, guess I better get going -- supper tonight is Indian all the way.  Malai Kofta, Mung Dal, and Chole Marsala.  Might even make Naan.  My house is going to smell so yummy!!  Much better than the nasty smoke smell of burnt beans from a week ago :-)

Crazy World - Is there Hope??

So finally after being fed up with Hannah's tummy issues and seemingly not being able to figure out what's wrong, I broke down and we had an appointment with a pediatric gastroenterologist (say that five times fast).

I loved her.  She's fairly young (probably my age) and was extremely thorough.  She spent pretty close to an hour with us, going over a detailed history and then physical exam.  She suggested blood work and then an abdominal ultrasound.

I have to say I was pleasantly surprised how quickly their office got it all going.  Hannah's u/s was less than a week later. According to the radiologist there, everything looks fine.

But I did find out the day before that her TTG was positive.  Never heard of that before in my life -- found out it's the celiac marker.  So my brain has been going crazy.  Believe it or not - I tend to be a person of action.  Once the problem is identified or a solution is given, I go full speed ahead and get it done.  (wish I felt the same about housekeeping!!)  But, no such luck.  Because of the nature of the disease I have to wait until the next step is discussed before going gluten free.  Hopefully by next week we will have another dr. appt. and can figure out what's next.

On a positive note -- we did discuss the possibility with Hannah and she and I made a trip to the grocery store.  She was very pleased to see some of the GF possibilities.  We'll see how she likes the taste.  Thankfully she LOVES rice!

For the first time in years, I'm allowing myself to hope that maybe something will help with my daughter.  I love her and wouldn't survive without her, but at times I think she must be the absolute most difficult child on the planet.  Maybe a new diet will help with some of that.  

I just want to get on with it!!